In October, I decided to change his regular doctor. I loved the doctor we had, but he was old school and did things that way- which would be ok in most circumstances, but not in Lucas's. The fact that we had to come for his first open heart surgery before anyone even began to seem concerned about his weight. His doctor just kept saying he was gaining plenty and not to worry. We went with a pediatrician that his cardiology team actually recommened- and I am so glad that we did. We went there on 27 calorie formula, switched to 30 calorie formula in December, and now we are getting a J-tube placed tomorrow.
The atmosphere there is also much better- more...doctory, I guess you could say.
For Halloween, he dressed up as a dionosaur- it was adorable!
His first Thanksgiving was pretty low key- we like things that way. We went to my grandma's and had dinner- he got to try a few things but was sleepy so he slept through a lot of it.
Christmas was also spent at my grandma's- we don't do much with Andy's family because, well, I don't care for a particular member, an she is ALWAYS there- and he played with his older cousin Zane. It was adorable to see them play <3. He opened his presents on daddy's lap and seemed to get bored with it pretty fast....maybe next year!
At his January appointment, his doctor referred him to a behavioral specialest- to see what she thought about his weight issues (he still wasn't gaining much on 30 calorie formula). We went to see her, and she was thrilled with his development- other then the weight gain. She said there was nothing physical hold him back, so she referred us to a speech therapist. We had that appointment on the same day as his next cardiologist appointment. His cardiologist said he was doing decent heart wise, and was going to continue to wait on his next surgery, but was going to go ahead and refer us to someone to get a gtube placed since he still wasn't gaining the appropriate amount of weight. We met that doctor two weeks later, and with his help, we decided to place a j tube- his pacemaker is where they would put the gtube and it seemed like a little bit better a chance of speedy recovery if they didn't have to move that around, too. So, he goes in tomorrow morning to have that placed. The doctor said it would probably be a three day stay- max, but we'll see....it was only supposed to be a 5-7 day stay last time, lol. I am uber nervous and just can't shake the feeling that something is going to go wrong again and we'll be here for a month again (not that I mind, he is in great hands after all :)).
Now we are all caught up to today, so it will start being more in depth with daily life :)
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